Autism
Hello my name is Toeps and I’m autistic. I wrote a book or two about it.
Soaring
Usually, when I write a blog, I know exactly what I want to say. The story has a beginning, a middle, an end, and ideally a twist, conclusion, or point I want to make. Not this time. I’m not entirely sure what I want with this piece, except to get the incident out of my head. It’s been circling around there for a day and a half now.
Toeps and Olga are checking the park
Two weeks ago, on a Sunday morning, I met up with Olga (my part-time marketing assistant) at Shinjuku Gyoen, the national park in the bustling heart of Tokyo. It was still early but already pretty warm. Summers in Tokyo often hit 36 degrees, and on top of that, the air is humid, making everything feel even stickier. Luckily, there was a breeze that morning, which helped with the heat but also served as a test for the microphone we wanted to try out.
I went to a meeting for autistic girls in Japan
Some time ago, I was invited by Kohei Kato, an autism researcher at Tokyo Gakugei University who also works as an editorial manager at Japanese publisher Kaneko Shobo. He immediately told me not to expect too much, but he wanted to get acquainted. He gave me two books from his publishing company about autism in girls and women, in Japanese. I haven’t read the books yet (my Japanese isn’t that good, unfortunately), but the titles were promising – these books were about camouflage, or masking.
Why infodumping may not be the best love language after all
A girl is talking to the camera in a short clip made for platforms like Instagram and TikTok. “People often think we autistic people are egocentric because we respond to your sad story with a similar story from our own lives – but this is how we show empathy!” A bit later, a brightly colored image appears in my feed: “Infodumping is my autistic love language.” We need to normalize it, because this is how autistic people show they care, according to the widely shared post.
Buongiorno and konnichiwa
It’s-a me, Toeps, business manager. This blog is a selection of the things I have done in recent months. Because a lot has happened, and a lot is still going to happen! What exactly, you ask? Well…
Nine struggles you’ll probably recognize when you’re autistic
This article was initially written for Flow Magazine. They asked me: What do you struggle with when you have autism?
Which jobs are suitable for autistic people?
In the silly piece in Trouw to which I responded with some other autistic writers, two critical “giftedness coaches” wrote that we couldn’t have autism at all, because, ‘Writers who say they have autism but write books and are in relationships are not examples of people with autism to us.’ Why their entire article made no sense we explained clearly enough in our reply, but the fact that they mentioned the very profession of being a writer made it extra funny to me. Did these two think that someone who sits like a hermit all day in their attic, in a cabin in the woods or, in my case, at the foot of Mt. Fuji, crafting sentences, cannot be autistic? How…?
Seven questions you can ask when an autistic person is stuck in their head
We autistic people are often good at stressing ourselves out. When we lose track, the same thoughts keep popping into our heads over and over again. Stress builds up and we can’t manage to calm ourselves down. When we ask for help, others say, “Don’t worry!”, or ” You’ll be fine!” Well intended, but perhaps the most unhelpful thing someone can say at times like that. “What do you mean, it will be fine?! How can you possibly know?!”, my head screams. Below are some questions that might actually help when an autistic person is stuck in their thoughts.
The autistic person who is doing too well
“I just saw you on Dutch tv station Max, and I think it’s really bizarre that you have houses in the Netherlands and Japan (*), and a job. I think you take advantage of autism for your own gain, yuck!” An email with pretty much this content I received last week, when I was on the train back home from my appearance at Tijd voor Max, in which I talked about my new book. In less than half an hour, this triggered viewer had taken the effort to Google me, check out my site, draw his conclusions and compose an email – although, judging by the language and typing errors, it was a pretty rushed message. Just five minutes of furiously pounding on a keyboard and boom, he had told that faker on tv the truth for once!
Eight things I do to plan better
As an autistic person, I sometimes find it difficult to manage stimuli. It is often too much, and if I go beyond my limits I sometimes have to recover for days. In my book I wrote about how I learned to create structure by planning. Now you may be thinking: Sure, planning is good, but how exactly do you do that? While I don’t think there is one method, and I believe everyone has to figure out what works for themselves, I have listed eight points below that have perfected my planning over the past ten years. I hope you find them helpful.
Aber du siehst gar nicht autistic aus
For some time now I saw in the Amazon statistics of my English book that, after the US and the UK, Germany is the largest buyer of my book. I also regularly received messages from German readers, asking whether the book would also be published in German. They would like to have their family read it for example, but they are not very good at English…
Identification
“Do you actually still identify as a woman?” Roufaida asked me, after we talked about her podcast, which I had also contributed to. Grrrls was the initial name, but now that she had recently interviewed a non-binary person, the name really couldn’t be used anymore. Shortly before, my Instagram app asked me if I wanted to put my pronouns in my bio. “Go away, leave me alone,” I thought. But why did I think that, anyway?
I went to Disneyland Paris with an Autipas (and in the middle of a pandemic)
I had been wanting to go to Disneyland Paris for months, but kept putting it off, “because Japan”. I couldn’t plan ahead, I didn’t dare take the corona risk, or Riemer had to work. But after we did not go in November, “because Japan”, and Japan and Omicron screwed me over again, I was determined: we are going. On New Year’s Eve. That way I would be rid of the Dutch fireworks misery as well.
A nuanced take on the Spectrum 10K study
There’s been a lot going on online recently. An organisation called Spectrum 10K is trying to recruit 10.000 autistic people to get DNA samples from, for an in-depth study of the genetic origins of autism. (Read more about it in this article from Indy100.) Science-y me is immediately interested. I too want to know where […]
Coming soon: But You Don’t Look Autistic At All!
It’s never the right moment. That’s what they tell people that want to have babies, but are not sure when. I’m talking about another kind of baby: my book, in English! Is this the right moment? Probably not. But I’m doing it anyway.
Flying autistic
For some time now, Schiphol has had green lanyards with sunflowers, for people with autism, or other invisible disabilities. With such a lanyard, employees should know that something is going on with you, so that they can respond in a helpful way to meltdowns or other problems. My first experience with this “service” was during […]